El derecho del paciente a la informaci車n: el arte de comunicar The patient＊s right to information: the art of communicating

作者：J Barbero

来源：Anales del Sistema Sanitario de Navarra, 2006.

• Informacion
• comunicacion
• etica
• conspiracion del silencio
• deliberacion
• Information
• Communication
• Ethics
• Conspiracy of silence
• Deliberation

Se comienza analizando el concepto de verdad, con sus m迆ltiples acepciones, para pasar a la descripci車n de las justificaciones habituales para no decir la verdad a los pacientes. Desde ah赤 se plantea qu谷 significa ser fieles a la verdad, destacando dos criterios: decirle %26quot;todo%26quot; lo que quiere saber y %26quot;s車lo%26quot; lo que quiere saber, utilizando las t谷cnicas comunicativas pertinentes y ofertarle una %26quot;garant赤a de soporte%26quot; adecuada ante la fragilidad que supone su enfermedad. Se trata de huir de dos extremos: el paternalismo cl芍sico (le evito informaci車n sistem芍ticamente, dada su fragilidad) y el encarnizamiento informativo. Posteriormente se exponen las condiciones que justificar赤an excepcionalmente no informar a un paciente concreto y se ofrecen orientaciones para facilitar el proceso comunicativo adecuado (congruencia informativa, ambiente de verdad, etc.). Por 迆ltimo, se trabaja la denominada %26quot;conspiraci車n del silencio%26quot;, desde la perspectiva t谷cnica y 谷tica y se reflexiona sobre c車mo dimensionar la informaci車n dentro de las estrategias de comunicaci車n y deliberaci車n. The article starts by analysing the concept of truth, with its numerous accepted meanings, and then goes on to describe the normal justifications for not telling the truth to patients. This serves as a basis to pose the meaning of being faithful to the truth, with two criteria emphasised: telling the patient %26quot;everything%26quot; he wants to know, and %26quot;only%26quot; what he wants to know, using the relevant communication techniques and offering him an adequate %26quot;guarantee of support%26quot; facing the fragility brought on by his disease. Two extremes are avoided: classical paternalism (systematic avoidance of information given his fragile state) and informational ferocity. Subsequently, the conditions are set out that would exceptionally justify not informing a specific patient, and guidelines are offered to facilitate the suitable communicative process (informational coherence, atmosphere of truth, etc.). Finally, the so-called %26quot;conspiracy of silence%26quot; is dealt with from an ethical and technical perspective, and there is a reflection on how to measure information within the strategies of communication and deliberation.