科研之友
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摘要
the concept of rare diseases is relatively new. they are those processes %26quot;ˋthat can be mortal or to cause a chronic weakening of the patient and who, due to its little prevalence, require combined efforts to treat them. for indicative purposes, a little prevalence is considered when is lesser than 5 cases per 10,000 people in the community%26quot;. the existence of these diseases is closely tied with orphan drugs, meaning all drugs, prosthesis, biological agents or dietetic preparations destined to the treatment of a rare disease. besides, it is necessary to add two factors more: 1. the primary attention physicians do not feel very motivated in their knowledge and 2. these diseases need a complex sociosanitary attention, habitually more expensive than chronic diseases. by all exposed the rare diseases appear like a universe that requires a new sociosanitary approach from the health system.
