科研之友
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摘要
introduction: to understand implications of the chronic disease for the child and his/her family it must be consider that the chronic disease can not be cured and that this cure may turn into a dangerous myth, involving the childˋs development process. aim: to understand the meaning that renal transplantation has for those children in dyalitic treatment and to know their expectations regarding this treatment. method: this is a qualitative study using as an investigation method a case study and the mayeroffˋs philosophical referential. the techniques used to collect data were semi-structured interviews and the subject was the design-story. 15 children who gave their consent to take part of this research, with ages ranging from 6 to 16 years were interviewed and submitted to a dialytic and hemodialytic treatment. results: four categories emerged from the semi-structured questions and after using the content analysis technique according to categories: building the knowledge on transplantation; searching to understand the wait for transplant; creating expectation on the transition; being in contact with frustration. based on the design-story we had a category: unveiling feelings by means of the draw. in this study, we will show the results regarding the semi-structures questions emerged from the individualˋs speech. conclusion: this study allowed us to understand that children realize the renal transplant as the only possibility to have their lives back to normal.
