科研之友
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摘要
objective: to assess the quality of life (qol) of patients with cystic fibrosis (cf) followed at a university referral center for cf. methods: a cross-sectional study involving application of the cystic fibrosis questionnaire (cfq) and shwachman score in cf patients between april of 2008 and june of 2009. results: the sample consisted of 75 patients. the mean age was 12.5 ㊣ 5.1 years (range, 6.1-26.4 years). the patients were divided into three groups by age in years: group i ( 14). the highest and lowest cfq scores were for the nutrition domain in group iii (89.3 ㊣ 16.2) and the social domain in group ii (59.5 ㊣ 22.3), respectively. groups i and iii differed significantly regarding the treatment domain (p = 0.001). regarding shwachman scores, there were significant differences between patients scoring 70 in the social (group i; p = 0.045), respiratory (group ii; p = 0.053), and digestive (p = 0.042) domains. in group iii, severity did not correlate with qol. in groups i and ii, patients with an fev1 %26lt; 80% of predicted did not differ from other patients for any cfq domain. however, in group iii, values for the following domains were significantly lower in patients with an fev1 %26lt; 80%: physical (p = 0.012); body image (p = 0.031); respiratory (p = 0.023), emotional (p = 0.041); and social role (p = 0.024). conclusions: it is important to assess qol in cf patients, because it can improve treatment compliance.
